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One panel has been called to address the use of blood transfusions to improve red blood cell count and mitigate complications of SCD, while another has been convened to improve the understanding of stem cell transplantation, currently the only cure for SCD.
The ASH SCD guidelines will expand on guidelines published by the National Institutes of Health’s National Heart, Lung, and Blood Institute (NHLBI).
“From enabling patients to find local health care providers with the knowledge and expertise to provide proper care, to supporting efforts to bring newborn screening and early intervention to infants and children with sickle cell disease in sub-Saharan Africa, there is enormous opportunity to transform the way we care for people suffering from SCD.
ASH is ready to tackle this effort on all fronts.” War on Opioids Hurts Sickle Cell Disease Patients Sickle Cell Disease Sufferers Trapped In Fight Against Opioid Scourge the thousands of individuals who suffer from the effects of sickle cell anemia, pain is a common part of their lives.
Objective The purpose of this study was to investigate the effects of BEATS on self-efficacy, trust, knowledge about SCD, and adherence in adolescents/young adults (AYA) with SCD.
Subjects Thirty AYA with SCD, 18-23 years old, recruited from an adult SCD clinic agreed to participate in four BEATS sessions over 1 year.
With only one FDA-approved treatment and no widely available cure, life is extremely challenging for people with SCD.
Pain — both chronic and acute — is common and results in tremendous suffering and difficulty continuing daily activities like work or school.
An inherited, lifelong chronic disorder affecting nearly 100,000 Americans, SCD is characterized by rigid, sickle-shaped red blood cells that stick to blood vessels, blocking blood flow.
So, many of those suffering from sickle cell anemia are prescribed a variety of powerful pain killer derivatives.
Their desire to receive relief may be viewed through the biased lens of racism and criminalization as a result of the opioid epidemic, and deter them from receiving care for their pain.
Thus, federal and state governments are seeking to pressure doctors to limit their prescriptions of such drugs to patients to curb the deadly trend.
According to Judy Anderson, the executive director of the Sickle Cell Anemia Association of Hampton Roads, a growing number of people who are suffering from sickle cell anemia may be severely impacted by the government’s effort to curb opioid addiction. [Epub ahead of print] The effects of music therapy on transition outcomes in adolescents and young adults with sickle cell disease.